|
|
|
Be sure to visit our Photo
Gallery to view a wide variety of pictures taken of those members who attended our Little
Hearts annual picnic. Underneath each photo is their first name, their diagnosis, and the year they were born. The Gallery includes a musical slide show that
allows you to cherish each image of hope.
New to this year's picnic is our "Heart Kid Video" which was videotaped by two of our heart "kids" - Alex (17) and Taryn (22).
To see the photo of kids with HLHS who attended the picnic - also referred to as Little Hearts Picture of HOPE/HLHS 2007 - scroll down to the bottom of the page. You'll see a photo of 54 kids ranging in age from a few months old to 22 years of age.
|
Picture of HOPE/CHD 2007
|
| |
Above photo
includes
143
"kids" with CHD who attended
our 11th annual picnic.
Breakdown by
diagnosis:
|
Aortic Stenosis (AS) - 2
Atrial Septal Defect (ASD) - 3
Atrioventricular Canal Defect (AVCD) - 1
Coarctation of the Aorta (COA) - 7
Double Inlet Left Ventricle (DILV) - 3
Double Outlet Right Ventricle (DORV) - 12
HLHS - 54
Pulmonary Atresia (PA) - 7
Pulmonary Stenosis (PS) - 2
|
Shone's Syndrome - 1
Sinus Venosus - 1
TAPVR - 1
Tetralogy of Fallot - 19
Transposition Great Arteries - 18
Transplant - 2
Tricuspid Atresia - 6
Tricuspid Stenosis - 2
Truncus - 1
VSD - 1
|
| |
|
| |
Here are the heart "kids" who attended our 11th annual picnic. The year they were born is listed first followed by their first name and the diagnosis they were born with. If you visit our 2007 slideshow, you can see a photo of each heart child. |
Many thanks to
www.lastcallfansite.com www.pemdesign.com
www.psolka-photo.com
for their music and photos!
|
| |
1956 - Maureen - AS, VSD
1960 - Kimberly - DILV
1966 - Michael - ASD
1977 - Daniel - DILV
1985 - Taryn - HLHS
1988 - Kenneth - HLHS
1990 - Alex - HLHS
1990 - Ben - HLHS
1990 - Sarah - HLHS
1991 - Josie - HLHS
1991 - Adam - HLHS
1992 - Ashley - HLHS
1993 - Alex - HLHS
1993 - Sarah - HLHS
1995 - Connor - HLHS
1995 - Elizabeth - HLHS
1996 - Jeffrey - HLHS
1996 - Adam - TOF.
1997 -
Joey - HLHS
1997 - Matthew - HLHS
1997 - Timothy -HLHS
1997 - Jacqueline - L-TGA
1998 - Isaac - TA, PA
1998 - Logan - COA, MVS
1998 - Jacob - HLHS
1998 - Zachary - DORV
1998 - Ben - HLHS
1998 -
Kayleigh - Transplant
1998 - Dylan - PA
1998 - Matthew - COA
1998 - Maria - HLHS
1999 - Quinn - HLHS
1999 - Jacob - HLHS, TAPVR
1999 - Angelo - HLHS
1999 - Christopher - HLHS
1999 - Nicholas - HLHS
1999 - Mollie - TGA
1999 -
Pablo - TGA, VSD, PS
1999 - Drew - COA, ASD
1999 - Jake - HLHS
2000 - Adam - HLHS
2000 -
Russell - HLHS
2000 - Richard/twin - TOF
2000 - Benjamin - PA w/IVS
2000 - Danielle - TOF
2000 - Zachary - TGA, VSDs
2000 - Amelia - PA, VSD
2001 - Andrea - DORV
2001 - Timothy - HLHS
2001 - Nicholas - Sinus Venosus
2001 - Ethan - TOF
2001 - Jaeleen - HLHS
2001 - Brendan - HLHS
2001 - Cameron - TA
2001 - Chrtopher - DORV
2001 - Daena - HLHS
2001 - Adam - DORV, MA
2001 - Kelly - HLHS
2001 - Jennifer - TA
2002 - Ryan - TOF
2002 - Isabella - HLHS
2002 - Alex - ASD primum
2002 - Eddie - TOF, PA
2002 - Nico - DORV, PS
2002 - Aaron - TGA
2002- Audrey - DORV, PS
2001 - Jason - TOF, PS
2002 - Bryna - TOF
2002 - Kira - DORV, TGA, VSD
2002 - Jaime - TA, PA
|
2003 - Emmanuelle - TOF
2003 -
Alec - HLHS
2003 - Daniel - HLHS
2003 - Jillian - PA, L-TGA
2003 - Daniel - DORV, TGA
2003 - Emma - TGA, PS
2003 - Gabriel - DORV, PA, VSD
2003 -
Hunter - HLHS
2003 - David - TOF, PA
2004 -
Ewan - Tricuspid Atresia
2004 - Lilliana - VSD
2004 - Dennis - TOF
2004 - David - TOF, PA
2004 - Olivia - PA, PS
2004 - Maxwell - HLHS
2004 - Pietro - PA
2004 - Andrew - HLHS
2004 - Camden - TAPVR
2004 - Samantha - TA
2004 - Cameron - Aortic Stenosis
2004 - Janey - TOF, PA, VSD
2004 - Harrison - TOF
2004 - Andrew - HLHS
2004 - Zachary - Shone's
2004 - Dylan - HLHS
2005 - Elena - TOF
2005 - Dale - TGA
2005 - Bryce - HLHS w/intact ASD
2005 - Kallie - HLHS
2005 - Ethan - PS, PA
2005 - Alexander - COA, AS
2005 - Olivia - HLHS
2005 - Eden - DORV, PS
2005 - Kalvin - TGA
2005 - Daniel - TOF, PS
2005 - Timothy - TS, PS
2005 - David - Transplant
2005 - Akshaj - TGA, VSD
2005 - Addison - TOF, VSD
2005 - Cora - HLHS
2005 - Delaney - COA, VSDs
2005 - Faith - DILV, VSD
2005 - Nathan - DORV
2005 - Dylan - DORV, TGA, COA
2005 - Brendan - L-TGA, VSD
2005 - Julia - TS, PS
2005 - Audrey - PA, VSD
2005 - Mggie - HLHS
2005 - Annabella - TA, VSD
2005 - Lindsay - HLHS
2005 - Kaitlyn - CAVCD
2005 - Max - TGA, VSD
2005 - Andrew - TGA, COA
2005 - Joseph - HLHS
2006 - Melissa - TGA
2006 - Ryan - TOF, PS
2006 - Aoife - Truncus
2006 - Charlie - TGA
2006 - Robert - ASD, PS
2006 - Miranda - HLHS
2006 - Katherine - TGA
2006 - Dezo - HLHS
2006 - Jack - HLHS
2006 - Katherine - HLHS
2006 - Blake - HLHS
2006 - Zoe - TOF
2006 - Landon - PS
2006 - Artur - COA, AS
2006 - Annabel - HLHS
2006 - Kailyn - HLHS
2006 - Justin - L-TGA, VSD
2006 - Lillian - COA
2006 - Samantha - TGA
2007 - Gabriel - TGA, VSD
|
 |
| |
|
|
|
|
Picture of HOPE/HLHS 2007
54 kids born with HLHS - here they are by
their date of birth:
1985 - Taryn
1988 - Kenneth
1990 - Alex, Ben, Sarah
1991 - Adam, Josie
1992 - Ashley
1993 - Alex, Sarah
1995 - Connor, Elizabeth
1996 - Jeffrey
1997 - Joey, Matthew, Timothy
1998 - Ben, Jacob, Maria
1999 - Angelo, Christopher, Jacob, Jake, Nicholas, Quinn
2000 - Adam, Russell
2001 - Brendan, Daena, Jaeleen, Kelly, Timothy
2002 - Isabella
2003 - Alec, Daniel, Hunter
2004 - Andrew B, Andrew P, Dylan, Maxwell
2005 - Bryce, Cora, Joseph, Kallie, Lindsay, Maggie, Olivia
2006 - Annabel, Blake, Dezo, Jack, Katherine, Kaitlyn, Miranda
Here are just a few that could be in Little Hearts Picture of HOPE/HLHS 2007. Just in our organization alone, we have 370 HLHS survivors as of June 3rd.
If you're looking for current HLHS statistics, please contact a children's hospital that performs the Norwood (stage 1) and ask how many they do in a calendar year. (For example, CHOP, Boston, MCHC do about 60 Norwoods a year). Hospitals don't put their stats on their site because they are misleading as they need to be "risk adjusted". Results for an 8 pound baby will be different than in a 4 1/2 pound baby. So, be careful of the information you find online. We don't recommend you search the internet for this information.
These photos are dedicated to the brilliant cardiothoracic surgeons and supportive pediatric cardiologists who've made it possible for our children to have a second chance at life. Some have had a rougher road than others but it has all been worth it. Many thanks to you all.
Back to Top
|
